#hawmc seven – one day.

I got off track.  Again.  Doing a blogging project during finals month is just silly I think.  I’m just gonna jump in when I can, I think.

To be honest, I don’t really have a “typical” day.  So I’m gonna try to do a typical-ish school day, since at least those have some sort of substance and sort-of structure.

7:05 am – Get up, put on glasses, stumble to bathroom, check peak flow, take Ventolin inhaler if I’m in the yellow zone.

7:10 – Get dressed.

7:20 – Take Atrovent, Symbicort and Qvar (usually in that order).  Brush hair between inhaler hits.  Brush teeth because that is important on inhaled steroids–and for other reasons ;).

8:00 – arrive at school, sit around and study, hopefully friends come visit me because it is boring if they don’t.

10:45 – MORNING SNACKYTIME.  Or what most people would call breakfast but it is not legit breakfast food usually. More like school cafeteria crap.

11:30 – class. [yes, this term was slacker Monday, Wednesday, Fridays, I only had one class]

12:20 pm – end class, bus home.

1:15 – Take atrovent if needed, eat lunch, check Twitter, deal with morning e-mails.

1:45 – Social media timez – twitter/fb/youtube or studyyy.

2:45 – Check peak flow, change for a walk, do a nebulizer treatment, stick earphones in ears, cellphone, iPod and inhaler in pocket and polish off hopefully at least 5K.

3:40 – Stretch.  Check post-walk peak flow.  Do a prophylactic neb treatment post-walk to head off any nasty delayed-flaring, tweet whilst doing said treatment, and plug the Garmin into the computer to synch it to GarminConnect and Dailymile.  I freaking love Dailymile, you should join me there.

3:50 – Probably realize the neb’s been spitting out nothing for five minutes and the treatment is done.  Take neb out of mouth, quit watching YouTube, pull out the textbooks or write a blog post.

4:00 – OMG SNACK TIME!

5:50 – Clear off table for DINNER.

6:00 — YAY DINNER!

7:00 – You can probably find me hanging out on Twitter for most of the evening.

7:30 – Evening Atrovent [if needed], Qvar and Symbicort.  Sucks to your ass-mar!  Maybe check my peak flow in here if I’m not lazy.

9:30 – I’ll probably be eating again around now. 😉

9:35-11:15 – Hangin’ with my Twitter peeps.  I spend a lot of time on Twitter, yo.

11:15 — Check peak flow if don’t forget.  Take some Ventolin if it’s in the yellow, if I’m good to go I take some Atrovent to hopefully head off any nighttime lungy dips.  Go pee [you wanted details, Wego prompt, I spared you all the other times I went pee during the day], brush teeth and then it is . . .

11:30 – Inhaler by the bed . . . BEDTIME!

#hawmc six – “the summer has me, the summer has me sold”

The book[let] closest to me was the VersaEmerge CD booklet.  I closed my eyes and ended up pointing to the lyric from the song “Lost Tree” off of the Fixed at Zero album.

I am in the midst of planning my summer.  It is involving a lot of thought and consideration on what the best choices will be.  I have an interview at a daycare on Friday.  I applied with the Canadian Diabetes Association to be an Assistant to the Camp Director for diabetes camp.  I have an application coming in the mail from a Christian day camp.

There are pros and cons to each job.  I know nothing about the day camp yet, so that is not an issue right now.

I’ve done daycare before, which is both a blessing and a curse.  A blessing because I know I like it, and a curse because I know I am okay at it.  It is a challenge in some ways, but it won’t be a new experience.  I will have four to eight solid weeks of work, August off, and possible September employment finalized.  These are all good things, but having August off is a bit weird as I intended to be working all summer.  But if it leads to additional school-year employment and perhaps next summer, that is fantastic.  Of course, I have yet to be offered the position, but the director is sounding very positive and I like that.

The Canadian Diabetes Association would be a completely new experience involving both program planning, organization, and a week or two at camp.  I would learn a lot.  I would have a very different experience behind me, and that is exciting.  I would be employed from the beginning of May to the end of August.  Did I mention I would get to work at CAMP?  I love camp.  I applied for that this evening, and will likely have an interview within the next week as postings go up next week.  This coming up is very interesting as the mom of one of my inclusion girlies passed this posting off to me without knowing of my new friendship with some members the DOC, and all that I’m learning from them.  That is tugging at me.

I am leaving this in the hands of the One who knows me better than I know myself.  I am trusting that whatever the first offer is, is the one I should take.  And I’m trusting that if neither offer comes, that there is something else awaiting me this summer.  Another unemployed summer is not an option.

Summer permeates my thoughts.  It has me sold that something good will come.

#hawmc five – ekphrasis is a funny word

Ekphrasis means writing about another at form.  So I’m supposed to yank something off of Flickr and write about it, basically.  [Yes I am late.  I had examness today so yesterday was spent cramming my brain full of motor development and other exercise-sciencey stuffs.]

I am supposed to write about this picture for 15 minutes and not edit it any.  So there is your disclaimer.

(image credit to hu, hanse on Flickr)

Air is simple.  Well, not in chemical matters is it simple.  It’s also not simple in regard to flying airplanes and doing the physics required to do such things.  But the way that we are supposed to interact with air is simple, and keeps us full of colour, brightness and life.

We bring the air into our bodies through a series of tubes.  These stand in the middle of the connection with our outer world and the colour that air is to bring us.

Sometimes, though, surrounding this beautiful interaction, as simple as it may be, darkness stands before the lightness, the wholeness and the colour.  This is when the once wide open tubes become smaller and more distant seeming, and it is hard to get the air where it needs to be.  It clouds thoughts and choices.  It tries to block what is ahead, and it tries to force change upon us.

We can change it.  We can change the closure, the grey, the darkness.  We can do our part to keep our lungs healthy so that we can experience the colour, the brightness, the flow of life around us.

And we can change this for other people by educating and advocating for lung health.  So that we can experience and breathe in colour without hesitation, that we can keep our lungs open.  That we can open the eyes to others to see what is in front of them in ten percent of the people around them.

Asthma is this reality.  Asthma is what causes me to realize that this world needs to change in many ways—to advocating, to sharing, to breathing life into those who need that extra nudge to become motivated advocates for themselves.  As much as asthma can take, it can also cause us to give more of ourselves—to be the colour amongst the darkness that this disease can become, to shine, and to remind ourselves that yes, we can do this . . . because if there is no darkness, there is no concept of light.  If there’s not negative, there is no concept of positive.  And if there is no grey, there is no concept of colour.

Lift your hands, reach . . . change your world. 

Breathe deep.

#hawmc four – wiki my asthma

Today’s HAWMC propmpt:

Revise your condition’s Wikipedia page.  Pretend you’re a Wikipedia writer – what sentence or paragraph should be included (in your opinion).  Has Wikipedia forgotten to include your condition?  Write a few quick facts and submit.

I think that because of the high prevalence of asthma, the Wikipedia page is fairly accurate and thorough. The only thing I would consider editing is this

image

While this is true, classification of severity needs to be done based on the most prevalent severity of asthma.  For instance, if someone has FEV1 variability of less than 20% (intermittent asthma), but have nighttime awakenings more than once a week, they should be placed in the “moderate persistent” category and treated as such.

For example, I typically do NOT experience nighttime symptoms that wake me up.  Yet, I do use my beta-2 agonist (rescue inhaler) daily on most days and have asthma symptoms daily.  This puts me into the moderate persistent category (which is also what my allergist has told me).

However, sub-categorization of severe asthma phenotypes are beginning to be researched—you can read about that here.

#hawmc two – asthma awareness

I was really, really touched by the responses to my post about the DOC the other day—thank you so much to all who shared the post and commented either via the comments form or on Twitter.

Today, as I really don’t have much time to write a post and because it’s free write day, I’m going to link to my friend Steve’s asthma forums, in which we’re discussing the public’s perceptions of asthma.  If you have asthma, come weigh in.  If you don’t come read and offer us YOUR thoughts – what could WE do to help you learn more about asthma?

#hawmc one — questions

Getting started on WEGO Health’s Health Activist Writer’s Month challenge a little late, but better late than never!

Today is day eight.  The prompt is

Friday April 8
Write a poem (5-­15 lines) where every line is a health question.

Are you still coughing? . . . So when will it stop?
And how do you work out when it’s hard to breathe?
I thought asthma was easy, don’t you have that blue inhaler?
So why aren’t you okay yet? (Because for me the medicine works perfectly).

———
When will the questions stop, from them and from myself?

Why are things not good enough, not on one inhaler but four?
What am I doing wrong to be stuck at this place here?
And haven’t we done all these tests before?
What more are you looking for?

Is it clear that in more ways than one I’m fairly atypical?
And do you really want answers to all that you’re asking?
Do you (really) want to hear my story?
Or am I just being cynical?